SpringWorks Therapeutics Inc and the ReNeu Trial for NF1-Related Plexiform Neurofibromas Transcript
The NF Network is a patient advocacy organization, and we are pleased to partner with pharmaceutical companies. This exciting time in NF Research is an accumulation result of all the efforts that the patient advocacy groups have done to fund NF Research. NF Network is very proud of the role we have played in obtaining over $380 million for federally funded NF Research.
As we have watched research go from basic science to translational, and now clinical applications, we've seen the need to partner with the pharmaceutical companies. We are thankful that SpringWorks Therapeutics also saw the need.
Early on they worked with us to develop a clinical trial educational document to educate our families about your rights and what you can expect when participating in a clinical trial. We'll be sending out these instructional brochures to everyone who participates in this webinar this evening by e-mail. The partnership with SpringWorks continues to be a valuable component for the NF Network as we move into the clinical trial stage.
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